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PRÊTS À RECUEILLIR DES FONDS POUR FAIRE DE LA FIBROSE KYSTIQUE DE L'HISTOIRE ANCIENNE?

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KissCFgoodbye #6
Montant collecté
5 225,00 $
Objectif de collecte 7 000,00 $

Mon Message

This is our 6th year of raising awareness and funds for Cystic Fibrosis. Unfortunately due to COVID19 we have to cancel the live event. I am hoping we can keep the spirit alive by donating here for this amazing cause. No amount is too small, it all adds up. I do this every year for Cystic Fibrosis because my daughter Tori was born with it. We have raised over $50000 over the last 5 years. 

TORI’S STORY

My name Is Tori Taskas, I’m 22 from Toronto, and I have cystic fibrosis. If you saw me in my everyday life you would think I’m just a normal teenager. I’m a full-time student, I like to go out and have fun with my friends, I love to sing and play music, and I do everything I can to enjoy life to the fullest. What most people don’t see is all the hard work I put in behind the scenes to stay healthy every day.

I was diagnosed with CF at birth.  Growing up you could say I had a pretty normal childhood. It wasn’t until I was around seven years old that I had to be admitted into the hospital for the first time. I don’t remember much of that hospital visit, but I do remember seeing my dad cry for the first time and me telling him it would be okay (Can you imagine that?). Fortunately, I recovered quickly and went six whole years without ever being hospitalized again.

It wasn’t until I was 13 that my health started to suffer and I was diagnosed with CF-related diabetes. On top of all my CF medications and therapy I now had to add checking my blood sugars and taking insulin injections to my already long list of treatments. Transitioning to high school can be hard for any young adult, so it didn’t help when I started to be hospitalized every year for lung infections as well. I would spend a few weeks in the hospital on IV and then come back to school on a portable IV because I didn’t want to fall behind. I began to feel different and I began to feel isolated from my fellow peers. I was always being pulled out of class to have a nurse tend to my IV and it would consistently beep and draw attention to me in the middle of class. It was hard, but I was ambitious about my future and I wasn’t going to let an infection stop me from getting a good grade.

I hope that one day I won’t have to worry about when I’ll be in the hospital next due to a lung infection.  I said this statement in one of the campaign videos for Cystic Fibrosis Canada. Afterwards, my dad asked me if that’s really what I wanted to say? He thought people might not understand how taxing and devastating the disease can be, and I agreed. This statement is deceivingly simple to someone who has no experience with CF, yet it carries so much weight for me. I have had to miss months of high school because I was sick with a lung infection. I had to drop out of my second year of university because of my health. I had to quit my dream first job as a dog groomer because the hair was bad for my lungs. Sometimes it’s even the small things that most people take for granted; like going to a party with friends or spending time playing with my dog. I constantly worry about when I’ll be in the hospital next, and what I will miss out on this time.

You would probably think after a few admissions to the hospital it would become easier, but it doesn’t. Every time I have to come in for treatment I am devastated. It means putting my life on hold for weeks so that I can get better. But I have hope. I see amazing new advancements in the world of medicine every day and I have more hope than ever for a bright and joyful future. This is why I have joined the CF Canada campaign to make the drug Orkambi accessible to all who can benefit. While this drug specifically won’t help me, I never want anyone to struggle the way I have. I hope for a future where people with cystic fibrosis see relief of their symptoms, and new children born with CF never have to face the hardships I have. It starts with public access to Orkambi, and I hope one day I will be a part of a future where CF stands for Cure Found.

What difference can one donation make in the fight against cystic fibrosis? The answer is – an important difference! Every dollar you donate to Cystic Fibrosis Canada moves us one step closer to a cure or control for CF. Your support of my event goes to work immediately, supporting the most promising CF research projects in the country, serving Canadians with cystic fibrosis, their families and health professionals who help them. I need your help and hope you’ll please give generously to create a future of hope for young Canadians with cystic fibrosis and their families. Your gift does make a difference!

Date de l'événement
2016-03-01 00:00
Nom du lieu
Événement - avec reçus

Mon Équipe

Paul fait partie de KissCFgoodbye #6
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Mes Supporters (56)

Rachel Koller a fait don de un montant non divulgué
27 janvier 2021 11:33
The Gaitanis Family a fait don de 200,00 $
29 octobre 2020 13:02
a fait don de 25,00 $
28 octobre 2020 19:29
Jim Gesang a fait don de un montant non divulgué
25 octobre 2020 09:43
Deb P a fait don de 25,00 $
21 octobre 2020 06:52
Nick & Barb a fait don de 100,00 $
20 octobre 2020 21:07
Judy Vent a fait don de 200,00 $
20 octobre 2020 19:09
Michael McCafferty a fait don de 50,00 $
20 octobre 2020 16:09
David Rudat, Sydney Laisser un message
04 octobre 2020 13:25
Hey Paul
Dave, Sydney & Roslyn a fait don de 100,00 $
04 octobre 2020 13:22
Bill Benjamin a fait don de 100,00 $
01 octobre 2020 22:12
Chelsea Bradt a fait don de 50,00 $
30 septembre 2020 09:36
Konstantinos & Thula Borovilos a fait don de 100,00 $
29 septembre 2020 20:04
a fait don de 100,00 $
29 septembre 2020 18:26
Sujanthan Sriskandarajah a fait don de 30,00 $
28 septembre 2020 10:01
Nirushan Sivagnanasuntharam a fait don de 30,00 $
28 septembre 2020 09:43
TS a fait don de 50,00 $
28 septembre 2020 01:43
Lily and Soula Borovilos a fait don de 50,00 $
27 septembre 2020 21:20
Bigfoot a fait don de 25,00 $
26 septembre 2020 16:49
Emily & Matt Hamilton a fait don de 150,00 $
26 septembre 2020 15:38
Daryl Mai and Denise R. a fait don de 1 000,00 $
26 septembre 2020 14:40
Zachary Laite a fait don de 20,00 $
26 septembre 2020 14:34
Sydney Addison-Rudat a fait don de un montant non divulgué
26 septembre 2020 13:57
Lauren Day a fait don de 25,00 $
26 septembre 2020 13:54
Gordon Restivo a fait don de un montant non divulgué
26 septembre 2020 13:49
Alex Paris a fait don de 50,00 $
26 septembre 2020 13:21
Maddy Hodges a fait don de un montant non divulgué
26 septembre 2020 12:21
Caitlin Branthwaite a fait don de 50,00 $
26 septembre 2020 12:07
Davide Cortinovis a fait don de 100,00 $
26 septembre 2020 10:55
Steve Macpherson a fait don de 40,00 $
26 septembre 2020 09:08
Brad Karulas a fait don de 100,00 $
25 septembre 2020 02:17
Chloe Comeau a fait don de 100,00 $
24 septembre 2020 22:29
Lucie Galerneau a fait don de 50,00 $
24 septembre 2020 19:32
CUTLOOSE Laisser un message
24 septembre 2020 18:56
keep up the good work hope you reach your goal and more. hi to TORI
cutloose a fait don de 100,00 $
24 septembre 2020 18:53
Darrin and Sharon a fait don de 100,00 $
24 septembre 2020 18:23
a fait don de un montant non divulgué
24 septembre 2020 14:57
Todd Larter a fait don de 100,00 $
24 septembre 2020 13:59
The Demon :) a fait don de un montant non divulgué
24 septembre 2020 13:23
Cindy Kuleshnyk a fait don de 50,00 $
23 septembre 2020 14:21
Sylvia Geist a fait don de 75,00 $
23 septembre 2020 13:59
Susan Gula Laisser un message
22 septembre 2020 14:29
Happy to donate in lieu of the show this year. Will miss the show for sure.
Susan Gula a fait don de 50,00 $
22 septembre 2020 14:28
a fait don de un montant non divulgué
21 septembre 2020 20:30
Arlyn Rathke a fait don de 100,00 $
21 septembre 2020 19:49
Olga Papavassiliou a fait don de 60,00 $
21 septembre 2020 13:03
Lisa a fait don de 75,00 $
24 août 2020 12:39
Eleni Semes a fait don de 50,00 $
23 août 2020 16:32
Jesse Caines a fait don de 200,00 $
23 août 2020 15:09
Bill & Sophie Scott a fait don de 100,00 $
22 août 2020 21:36
Jim Laisser un message
21 août 2020 21:05
You will always have our support! Love you all!
Jim & Judy Manolakos a fait don de 200,00 $
21 août 2020 21:04
Laurie and Alex a fait don de 50,00 $
21 août 2020 15:37
Sukhie Kaur a fait don de 50,00 $
21 août 2020 14:55
Julie Vlahos a fait don de 100,00 $
17 août 2020 07:23
John Chronis a fait don de 500,00 $
25 juillet 2020 09:43