Be a Difference Maker in the 2019 ASF Walk
PLEASE SPONSOR
Jahan Livai
Amount Raised
$830.00
Fundraising Goal $150.00

My Message

Me and my family are joining the walk for a cure this year sponsored by the Angelman Syndrome Foundation. We are thankful to have such a joyous and heart warming child like Jahan in our family. He means everything to us, so we want to spread the word for this amazing foundation that supports people like Jahan and many others with Angelman syndrome.  Anything you can donate will be greatly appreciated and memorable to our family and many others!

Angelman Syndrome is a severe neurogenetic disorder that affects about 1 in 10,000 individuals!

Their symptoms and characteristics are smiliar to those with autism or cerebral palsey, which include developmental delays, seizures, and lack of speech. However, their most beautiful trait is their overly joyous demeanor and excitability. 

Although there is no current cure for Angelman syndrome, recent studies in mouse models based on UBE3A gene replacement or reactivation in neurons hold great therapeutic potential, including for the treatment of epilepsy. There is hope and we want you to be a part of it!

The ASF has opened 8 Angelman Syndrome Clinics and invested over $8 million in research to find a cure. 

A cure would mean a life with out seizures, anxiety or lack of communication.  

You can join me in being a Difference Maker by making a donation at the link below:

https://secure.e2rm.com/registrant/FundraisingPage.aspx?registrationID=4470105&langPref=en-CA

Let me know if you are interested in joining me at the 2019 ASF Walk.  Or find information at www.angelman.org/walk/.

We truly appreciate your support!

Location Name
2019 ASF Walk NY, Westchester

My Team

Gloria is part of Livai Family
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My Supporters (12)

Rebecca donated an undisclosed amount
Jun 3, 2019 3:00 PM
Kevin Wilkin donated an undisclosed amount
May 31, 2019 1:49 PM
Rocco Sforza donated an undisclosed amount
May 20, 2019 12:07 AM
Les saltzman donated an undisclosed amount
May 16, 2019 9:28 PM
Dora Lau donated $100.00
May 16, 2019 3:26 PM
Divya Chiminyan donated an undisclosed amount
May 12, 2019 10:16 AM
Igal Namdar donated $100.00
May 10, 2019 3:29 PM
bahareh livai donated $100.00
May 10, 2019 3:08 PM
Anonymous donated an undisclosed amount
May 10, 2019 2:46 PM
Jeremy Davies RD donated $100.00
May 10, 2019 12:27 PM
CHARLES CATALANO donated $100.00
May 10, 2019 10:42 AM
Gloria Livai donated $50.00
May 5, 2019 8:55 AM