Windy City Angels - Bank of America Chicago Marathon
PLEASE SPONSOR
Please Sponsor Sarah on behalf of Luke Jurgensmeyer
Amount Raised
$1,181.00
Fundraising Goal $2,500.00

My Message

I am so excited to have the chance to join the Windy Angels team for the second time for the 2020 Chicago marathon. My family has been involved in the Angelman Syndrome community since my younger brother, Luke, was diagnosed with AS as an infant. Anyone who knows Luke can attest to his incredible empathy, his desire to form meaningful relationships, his quest to communicate, and his unparalleled enthusiasm for gummy candy. 

From research studies to speaking in the community, my family has advocated for the AS community in a myriad of ways over the years, and I can't wait to have the chance to give back through running through my city! I am currently living in Chicago and attending Northwestern's Graduate Program in Genetic Counseling, and am learning more than ever before about the importance of resources for families affected by rare conditions like Angelman Syndrome. 

This will be my third marathon, and I could not imagine a better cause to be running for than the Angelman Syndrome Foundation. We are at such a pivotal time, in terms of research and mobilization, and what we need now are the funds. Your donations will go towards research into discovering drug treatments for AS as well as opening AS clinics in hospitals around the country. AS is a rare condition, affecting only 1 in 15,000 live births, and as a result we are in need of advocates and donations. We have identified the UBE3A gene responsible for AS, and now we need the manpower and money to make a treatment. 

Help us to be the cure- as a graduate student, I know every dollar counts, but your donations have the power to bring about an incredibly impactful change for Luke and the rest of our community. Please also consider reading more about Angelman Syndrome so you can be an advocate and help us educate more people about AS: 

https://www.angelman.org/what-is-as/

Event:
Bank of America Chicago Marathon

My Team

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My Supporters (11)

Venmo Donations donated an undisclosed amount
Oct 18, 2020 11:07 PM
Mary Hickman donated an undisclosed amount
Oct 11, 2020 12:54 PM
AS Awareness Day Donations donated $261.00
Mar 18, 2020 10:20 AM
Anonymous donated an undisclosed amount
Feb 15, 2020 12:44 PM
Allen & Jeanie Fischer donated $100.00
Feb 15, 2020 9:42 AM
Mary Armintrout donated an undisclosed amount
Feb 14, 2020 11:01 AM
Rachel Arends donated $25.00
Feb 14, 2020 10:39 AM
The Kuhn Family donated $100.00
Feb 14, 2020 10:37 AM
Catherine donated $250.00
Dec 29, 2019 12:55 PM
Kitty Murphy left a message
Nov 21, 2019 11:18 AM
Welcome back to the team, Sarah! I am super-excited to be working with you again. The ASF and all our families are so blessed to have you representing us in the Chicago Marathon!
Angelman Syndrome Foundation donated $300.00
Nov 20, 2019 12:00 AM