Windy City Angels - Bank of America Chicago Marathon
PLEASE SPONSOR
Corry Elzenga
Amount Raised
$2,150.00
Fundraising Goal $2,500.00

My Message

Dear Colleagues, Friends and Family,

With this message, I would like to ask for your contribution to the Angelman Syndrome Foundation. 

Early December I got the honor to visit the FAST congress in Chicago. During this congress, I learned a lot about Angelman Syndrome and got the chance to speak with little Angels and parents. To hear their personal stories, touched me deeply. Angelman Syndrome is a rare genetic neurodevelopmental disorder with a prevalence of 1 in 12,000 to 20,000 births. There is a high-unmet medical need and societal impact in many dimensions, and affected individuals require life-long care and cannot live independently. 

Individuals with AS have many features such as global developmental delay, intellectual disability, epilepsy (90% before age 3 years) with atypical underlying EEG, ataxia, tremor, hyperactivity, limited speech, and sleep dysregulation. 

Anxiety, aggression, and self-injurious behavior may also be present. 

Diagnosis of the disorder is often made based on emergence of clinical features after the first year of life although the developmental trajectory of AS is not well described, in particular regarding the antenatal and early postnatal periods. Currently, there are no disease modifying therapies available for AS, and care is limited to supportive interventions attempting to mitigate behavioral, motor, communication, and sleep deficits, combined with symptomatic treatment of medical complications, including seizures and sleep deficits.

I am working now on the Angelman Syndrome program within Roche. Recently I noticed a message on social media that the ASF was looking for a few additional runners to support the fundraising by participating in the Chicago Marathon. For me this is a chance to support the ASF also in a different way. I am so pleased that I can join the team; I would like to ask for your support to raise as much as money as we can, to support this important Foundation for Angelman children. Your support would be highly appreciated, please find more information on https://www.angelman.org/. 

Event:
Bank of America Chicago Marathon

My Team

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My Supporters (58)

Benedicte Passemard donated $55.00
Sep 7, 2020 3:28 AM
Femke Kroes donated $100.00
Feb 28, 2020 4:50 PM
Jorrit Tjeertes donated $50.00
Feb 17, 2020 1:18 AM
Sandra Barella donated $55.00
Feb 14, 2020 1:20 AM
Sal Valente donated an undisclosed amount
Feb 6, 2020 12:43 PM
Claire Kelly left a message
Feb 6, 2020 5:08 AM
Good luck Corry!
Claire Kelly donated $40.00
Feb 6, 2020 5:08 AM
Izolda donated an undisclosed amount
Feb 6, 2020 3:19 AM
Izolda left a message
Feb 6, 2020 3:15 AM
Wishing you all the best for the run, Corry!
Venus left a message
Feb 5, 2020 3:35 PM
Go for it!
Venus So donated an undisclosed amount
Feb 5, 2020 3:34 PM
Rachel Hanley donated $85.00
Feb 5, 2020 1:23 PM
Martin Kornacker left a message
Feb 5, 2020 9:33 AM
Good luck with the run!
Martin Kornacker donated an undisclosed amount
Feb 5, 2020 9:32 AM
Anne B. left a message
Feb 5, 2020 8:42 AM
All the best Corry! You could try Angel wings or the Vaporfly...
Anne Brillouet donated an undisclosed amount
Feb 5, 2020 8:39 AM
Leo left a message
Jan 29, 2020 10:38 AM
Go Corry Go!
Leonardo Lauciello donated an undisclosed amount
Jan 29, 2020 10:38 AM
Marina Leyba left a message
Jan 29, 2020 9:47 AM
Thank you so much for supporting a cause so near and dear to my heart. My 12-year old daughter, Bella, is diagnosed with Angelman Syndrome, del . I work in RMS in Tucson, AZ.
Marina Leyba donated $125.00
Jan 29, 2020 9:45 AM
Tim left a message
Jan 29, 2020 6:35 AM
Good Luck.
Tim Seabrook donated $50.00
Jan 29, 2020 6:34 AM
Anonymous donated an undisclosed amount
Jan 29, 2020 6:31 AM
Greg Hooper left a message
Jan 16, 2020 3:56 AM
Good Luck, Great Cause!!
Greg Hooper donated $35.00
Jan 16, 2020 3:55 AM
Magda left a message
Jan 14, 2020 4:41 AM
Great cause! Good luck Cory!
Anonymous donated an undisclosed amount
Jan 14, 2020 4:40 AM
JF Herrouin left a message
Jan 10, 2020 5:28 AM
Very good initiative. Good Luck Corry for your Marathon and
Herrouin donated $35.00
Jan 10, 2020 5:27 AM
Jennifer N. left a message
Jan 7, 2020 9:22 AM
Way to go Corry! Good luck!
Jennifer N. donated $50.00
Jan 7, 2020 9:21 AM
David West donated $50.00
Jan 7, 2020 8:54 AM
Dieter Muri left a message
Jan 7, 2020 7:22 AM
Corry - great idea and good luck for your marathon. I am sure you will rock it!
Dieter Muri donated $75.00
Jan 7, 2020 7:21 AM
Meike left a message
Jan 7, 2020 5:52 AM
That's great Corry - good luck!
Meike donated an undisclosed amount
Jan 7, 2020 5:51 AM
Cosimo left a message
Jan 7, 2020 4:28 AM
Hi Corry Very respectable! Wish you a lot of fun and success
Cosimo donated $45.00
Jan 7, 2020 4:25 AM
Kirstie M left a message
Jan 7, 2020 4:24 AM
Go Corry! What a great cause - best of luck for your training.
Kirstie Meldrum donated $35.00
Jan 7, 2020 4:23 AM
Robert McCollum donated $35.00
Jan 7, 2020 4:13 AM
Mhairi left a message
Jan 7, 2020 3:33 AM
Good Luck Cory!
Mhairi donated $20.00
Jan 7, 2020 3:33 AM
Jas Bajwa left a message
Jan 6, 2020 9:01 AM
Good luck Corry and all the best! Go smash it!
Jas Bajwa donated $30.00
Jan 6, 2020 8:59 AM
Karine S. left a message
Jan 6, 2020 8:34 AM
Good luck Corry! All the best :)
Karine S. donated $50.00
Jan 6, 2020 8:34 AM
Ina Bruenig-Traebert left a message
Jan 6, 2020 6:23 AM
Go Corry!
Ina Bruenig-Traebert donated $50.00
Jan 6, 2020 6:21 AM
Daniel Chan donated $50.00
Jan 6, 2020 6:13 AM
Rahima Karim left a message
Jan 6, 2020 6:06 AM
Go Corry! Wishing you the best!
Rahima Karim donated $50.00
Jan 6, 2020 6:05 AM
Jean-Philippe left a message
Jan 6, 2020 5:21 AM
Go Corry Go!
Jean-Philippe GOU donated $80.00
Jan 6, 2020 5:21 AM
Emma Harrop donated $50.00
Jan 6, 2020 5:03 AM
Karen Buchanan donated $15.00
Jan 6, 2020 4:53 AM
Magali M. donated $50.00
Jan 6, 2020 4:43 AM
Angelman Syndrome Foundation donated $300.00
Dec 20, 2019 12:00 AM