Windy City Angels - Bank of America Chicago Marathon
Sarah Jurgensmeyer
Amount Raised
Fundraising Goal $3,000.00

My Message

I am so excited to have the chance to join the Windy Angels team for the 2019 Chicago marathon. My family has been involved in the Angelman Syndrome community since my younger brother, Luke, was diagnosed with AS as an infant. Anyone who knows Luke can attest to his incredible empathy, his desire to form meaningful relationships, his quest to communicate, and his unparalleled enthusiasm for gummy candy. 

From research studies to speaking in the community, my family has advocated for the AS community in a myriad of ways over the years, and I can't wait to have the chance to give back through running in my new city. I am currently living in Chicago and attending Northwestern's Graduate Program in Genetic Counseling, and am learning more than ever before about the importance of resources for families affected by rare conditions like Angelman Syndrome. 

This will be my second marathon, and I could not imagine a better cause to be running for than the Angelman Syndrome Foundation. We are at such a pivotal time, in terms of research and mobilization, and what we need now are the funds. Your donations will go towards research into discovering drug treatments for AS as well as opening AS clinics in hospitals around the country. AS is a rare condition, affecting only 1 in 15,000 live births, and as a result we are in need of advocates and donations. We have identified the UBE3A gene responsible for AS, and now we need the manpower and money to make a treatment. 

Help us to be the cure- as a graduate student, I know every dollar counts, but your donations have the power to bring about an incredibly impactful change for Luke and the rest of our community. Please also consider reading more about Angelman Syndrome so you can be an advocate and help us educate more people about AS:

Bank of America Chicago Marathon

My Team

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My Supporters (18)

Jennifer Kim donated $20.00
Mar 13, 2019 4:20 PM
Kelly M left a message
Mar 8, 2019 9:48 AM
Get out there in that cold and run! :)
Kelly Moyer donated $50.00
Mar 8, 2019 9:47 AM
Aunt Christy and Uncle Mike Reese donated $50.00
Feb 19, 2019 1:39 PM
International AS Day Venmo Donations donated $322.00
Feb 17, 2019 11:45 AM
MARY ANN LANGAS donated $150.00
Feb 15, 2019 3:15 PM
Brian Ramsey donated an undisclosed amount
Feb 15, 2019 12:58 PM
Allie Tearney donated an undisclosed amount
Feb 15, 2019 10:32 AM
Kenny F donated $20.00
Feb 15, 2019 9:51 AM
Anonymous donated $200.00
Feb 14, 2019 9:24 PM
Allen & Jeanie Fischer donated $100.00
Jan 28, 2019 1:37 PM
The Langas Family donated $250.00
Jan 25, 2019 1:43 PM
Teammate Lisa left a message
Jan 18, 2019 11:48 AM
Hi Sarah! Wishing you a healthy and successful training season...See you in October!
Jurgs Family donated $250.00
Jan 18, 2019 8:13 AM
Leigh Volkland donated $50.00
Dec 7, 2018 8:16 AM
Lora Brewer Ackerman donated $50.00
Dec 7, 2018 1:07 AM
Mary A. donated $20.00
Dec 6, 2018 2:30 PM
Angelman Syndrome Foundation donated $300.00
Nov 9, 2018 12:00 AM