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VHL Canada & Henry Seo
MY GOAL $2,000.00

My Message

VHL (von Hippel-Lindau Syndrome) is a rare genetic disease that causes tumours, benign and malignant, in several parts of the body. VHL is a life-long battle for patients and their family members. 1/36,000 or 1000 have VHL in Canada.

I have VHL and have had 5 brain tumour and 3 kidney cancer operations from age 15-48. I started this charitable organization in 2016 to address a gap to specifically support Canadians dealing with VHL.

Sponsor me. On October 21, 2018, I’ll be representing my disease's official charity @ Scotiabank Toronto Waterfront Marathon!

This is the 2nd annual 'walk for VHL' and on the same weekend, these landmarks are illuminated RED & WHITE for VHL:

🍁 3D TORONTO sign @ Nathan Phillips Square Gold R for Rare on Oct. 19


🍁 CN Tower and

🍁 CAN-US Peace Bridge on Oct. 20

For example, $20 minimum will help us to provide support to patients and their family members all over Canada; get you an income tax receipt; and be free from online fees – so it all goes to us. We are cost-efficient. We are volunteer-run. We pay no salaries, just out-of-pocket expenses.  


Patient, Volunteer, Chair

Henry Seo
My Charity:
VHL Canada

My Team

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My Supporters (2)

Patricia Beckkey donated $100.00
Sep 14, 2018 8:57 PM
Henry Seo donated $20.00
May 10, 2018 6:44 PM
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