Be the Cure for Angelman Sydnrome
Support
Icicle-Bicycle Saemundur and Monika
Amount Raised
$671.11
Fundraising Goal $5,000.00

My Message

Not everybody in this world is lucky enough to have the time, the means, or most importantly the health to go on a long journey like the one we are embarking upon. It would give our adventure a deeper meaning if it could be used for the benefit of those less fortunate than us.

Therefore, we would like to increase the awareness and raise funds for the research and treatment of the Angelman syndrome. We had never heard of this syndrome before hearing the news from our friends that their daughter had been diagnosed with it.

Angelman syndrome is a complex genetic disorder that primarily affects the nervous system. Characteristic features of this condition include delayed development, intellectual disability, severe speech impairment, and problems with movement and balance (ataxia). Most affected children also have recurrent seizures (epilepsy) and a small head size (microcephaly). Delayed development becomes noticeable by the age of 6 to 12 months, and other common signs and symptoms usually appear in early childhood.

Children with Angelman syndrome typically have a happy, excitable demeanor with frequent smiling, laughter, and hand-flapping movements. Hyperactivity, a short attention span, and a fascination with water are common. Most affected children also have difficulty sleeping and need less sleep than usual.

Thank you!

Event Date
Oct 28, 2015 12:00 AM
Location Name
Online

My Team

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My Supporters (9)

Devyn and Adrian Day donated an undisclosed amount
Jul 3, 2018 4:57 AM
Jerry Perkins donated an undisclosed amount
Jul 2, 2018 8:11 PM
Sirrý donated an undisclosed amount
Jul 2, 2018 12:48 PM
Anonymous donated an undisclosed amount
Jun 14, 2018 8:15 AM
Guðrún Á. R. donated an undisclosed amount
Jun 12, 2018 8:03 AM
Perla Bjork Egilsdottir donated an undisclosed amount
Jun 11, 2018 11:04 AM
Saemundur Valdimarsson donated an undisclosed amount
Jun 11, 2018 7:47 AM
Guðrún Vald. left a message
Jun 8, 2018 12:22 PM
Gangi ykkur vel! :)
Guðrún Valdimarsdóttir donated an undisclosed amount
Jun 8, 2018 12:21 PM