Windy City Angels - Bank of America Chicago Marathon
PLEASE SPONSOR
Support our Angels!
Amount Raised
$1,945.00
Fundraising Goal $2,500.00

My Message

If you have ever had the pleasure of meeting my oldest daughter Lucy, you know she may just be the happiest girl there ever was. Did you know that she has a rare neurogenetic disorder? Getting to the root of Lucy’s diagnosis has been a long and difficult process. Lucy was misdiagnosed as having cerebral palsy for over three years. When we met Lucy’s new neurologist we learned about a neurogenetic disorder called Angelman’s syndrome (AS).

 

AS is often misdiagnosed as cerebral palsy (as was the case for several years with Lucy) or autism. Individuals with AS have intellectual disabilities, a lack of speech, difficulties with motor control, sleep difficulties, and seizures. However, people with AS have many wonderful qualities as well. People with AS are social, happy, and friendly. Like most people, people with AS experience a whole range of emotions; but, they sure do tend to be happy most of the time! These typical qualities match Lucy, but Lucy is still very much her own unique person. Lucy is patient, kind, loving, curious, and a great friend and sister.

 

When we learned about Angelman Syndrome, we discovered a whole community of loving families and caretakers who were committed to making a difference in the lives of their “angels”. One of the most important fundraisers for The Angelman Syndrome Foundation is their Wind City Angels Marathon team. I have decided to lace up my sneakers in support of Lucy and the AS community and run the Chicago Marathon in October 2019. My goal is to raise over $2,500 for this cause.

 

How does your donation make a difference? The Angelman Syndrome Foundation uses all money that is raised to support families caring for someone with Angelman syndrome and is dedicated to finding a cure for the syndrome. There is a lot of reason to be optimistic about a cure. Unlike cancer or other diseases, we know the exact gene that causes Angelman syndrome. Dr. Art Beaudet, world-renowned geneticist and AS researcher says this about AS, “Compared to 30 other pediatric neurological disorders, I would make the case that Angelman syndrome is at the top- it is THE single-most optimistic possibility for a cure.”  Currently, there is a drug in clinical trials that helps to alleviate many of the symptoms of Angelman syndrome. Your contribution helps to provide funding for this important research and provides support for families caring for an individual with AS.

 

Please consider supporting The Angelman Syndrome Foundation and the Windy City Angels Marathon Team. Your contribution could help to be the cure!

 

Thank you for your support!

Event:
Bank of America Chicago Marathon

My Team

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My Supporters (25)

Anissa Brown donated $50.00
Mar 15, 2019 6:02 PM
Gina Ketchuck donated an undisclosed amount
Feb 27, 2019 9:45 PM
Susan Jarvis donated $50.00
Feb 26, 2019 6:55 AM
Ellen left a message
Feb 15, 2019 1:39 PM
I'll be with you in spirit along your practices and for the race. You are Strong of Heart!!
Anonymous donated an undisclosed amount
Feb 15, 2019 1:38 PM
Barbara And Janna donated $50.00
Feb 10, 2019 5:23 PM
Mama Mitchell left a message
Feb 10, 2019 4:43 PM
Run like the wind.
Tracey Mitchell donated $25.00
Feb 10, 2019 4:42 PM
Langston and Mabel donated $25.00
Feb 10, 2019 2:50 PM
Shelby Kennedy donated $15.00
Feb 10, 2019 12:25 PM
Kendra, Daniel & John Henry donated $25.00
Feb 10, 2019 9:19 AM
Robert Ketchuck donated an undisclosed amount
Feb 9, 2019 7:32 PM
Margy Murphy, John Erwin donated $100.00
Feb 9, 2019 12:44 PM
Michelle BIll Brian Mckenzie Kevin Campbell donated $200.00
Feb 9, 2019 12:06 PM
Shae Jones-Alexander donated $50.00
Feb 9, 2019 11:47 AM
Whitney Burns donated an undisclosed amount
Feb 9, 2019 11:43 AM
Daniel & Allison Erwin donated $40.00
Feb 9, 2019 11:30 AM
Kate Bradford donated $50.00
Feb 9, 2019 10:54 AM
Teammate Lisa left a message
Jan 18, 2019 11:50 AM
Hi Laura! Wishing you a healthy and successful training season...See you in October!
Michael Ketchuck donated $250.00
Nov 10, 2018 4:36 PM
Dan and Cathi McCormick donated $250.00
Nov 10, 2018 11:18 AM
Kelly Turner donated $55.00
Nov 9, 2018 8:14 PM
Ryan McCormick donated $50.00
Nov 9, 2018 8:21 AM
Laura Ketchuck donated $50.00
Nov 9, 2018 7:49 AM
Angelman Syndrome Foundation donated $300.00
Nov 9, 2018 12:00 AM