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Are you ready to fundraise to make cystic fibrosis history?

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PLEASE SPONSOR
KissCFgoodbye #6
Amount Raised
$4,935.00
Fundraising Goal $7,000.00

My Message

This is our 6th year of raising awareness and funds for Cystic Fibrosis. Unfortunately due to COVID19 we have to cancel the live event. I am hoping we can keep the spirit alive by donating here for this amazing cause. No amount is too small, it all adds up. I do this every year for Cystic Fibrosis because my daughter Tori was born with it. We have raised over $50000 over the last 5 years. 

TORI’S STORY

My name Is Tori Taskas, I’m 22 from Toronto, and I have cystic fibrosis. If you saw me in my everyday life you would think I’m just a normal teenager. I’m a full-time student, I like to go out and have fun with my friends, I love to sing and play music, and I do everything I can to enjoy life to the fullest. What most people don’t see is all the hard work I put in behind the scenes to stay healthy every day.

I was diagnosed with CF at birth.  Growing up you could say I had a pretty normal childhood. It wasn’t until I was around seven years old that I had to be admitted into the hospital for the first time. I don’t remember much of that hospital visit, but I do remember seeing my dad cry for the first time and me telling him it would be okay (Can you imagine that?). Fortunately, I recovered quickly and went six whole years without ever being hospitalized again.

It wasn’t until I was 13 that my health started to suffer and I was diagnosed with CF-related diabetes. On top of all my CF medications and therapy I now had to add checking my blood sugars and taking insulin injections to my already long list of treatments. Transitioning to high school can be hard for any young adult, so it didn’t help when I started to be hospitalized every year for lung infections as well. I would spend a few weeks in the hospital on IV and then come back to school on a portable IV because I didn’t want to fall behind. I began to feel different and I began to feel isolated from my fellow peers. I was always being pulled out of class to have a nurse tend to my IV and it would consistently beep and draw attention to me in the middle of class. It was hard, but I was ambitious about my future and I wasn’t going to let an infection stop me from getting a good grade.

I hope that one day I won’t have to worry about when I’ll be in the hospital next due to a lung infection.  I said this statement in one of the campaign videos for Cystic Fibrosis Canada. Afterwards, my dad asked me if that’s really what I wanted to say? He thought people might not understand how taxing and devastating the disease can be, and I agreed. This statement is deceivingly simple to someone who has no experience with CF, yet it carries so much weight for me. I have had to miss months of high school because I was sick with a lung infection. I had to drop out of my second year of university because of my health. I had to quit my dream first job as a dog groomer because the hair was bad for my lungs. Sometimes it’s even the small things that most people take for granted; like going to a party with friends or spending time playing with my dog. I constantly worry about when I’ll be in the hospital next, and what I will miss out on this time.

You would probably think after a few admissions to the hospital it would become easier, but it doesn’t. Every time I have to come in for treatment I am devastated. It means putting my life on hold for weeks so that I can get better. But I have hope. I see amazing new advancements in the world of medicine every day and I have more hope than ever for a bright and joyful future. This is why I have joined the CF Canada campaign to make the drug Orkambi accessible to all who can benefit. While this drug specifically won’t help me, I never want anyone to struggle the way I have. I hope for a future where people with cystic fibrosis see relief of their symptoms, and new children born with CF never have to face the hardships I have. It starts with public access to Orkambi, and I hope one day I will be a part of a future where CF stands for Cure Found.

What difference can one donation make in the fight against cystic fibrosis? The answer is – an important difference! Every dollar you donate to Cystic Fibrosis Canada moves us one step closer to a cure or control for CF. Your support of my event goes to work immediately, supporting the most promising CF research projects in the country, serving Canadians with cystic fibrosis, their families and health professionals who help them. I need your help and hope you’ll please give generously to create a future of hope for young Canadians with cystic fibrosis and their families. Your gift does make a difference!

Event Date
Mar 1, 2016 12:00 AM
Location Name
Event By Me - Receipted

My Team

Paul is part of KissCFgoodbye #6
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My Supporters (52)

Deb P donated $25.00
Oct 21, 2020 6:52 AM
Nick & Barb donated $100.00
Oct 20, 2020 9:07 PM
Judy Vent donated $200.00
Oct 20, 2020 7:09 PM
Michael McCafferty donated $50.00
Oct 20, 2020 4:09 PM
David Rudat, Sydney left a message
Oct 4, 2020 1:25 PM
Hey Paul
Dave, Sydney & Roslyn donated $100.00
Oct 4, 2020 1:22 PM
Bill Benjamin donated $100.00
Oct 1, 2020 10:12 PM
Chelsea Bradt donated $50.00
Sep 30, 2020 9:36 AM
Konstantinos & Thula Borovilos donated $100.00
Sep 29, 2020 8:04 PM
Anonymous donated $100.00
Sep 29, 2020 6:26 PM
Sujanthan Sriskandarajah donated $30.00
Sep 28, 2020 10:01 AM
Nirushan Sivagnanasuntharam donated $30.00
Sep 28, 2020 9:43 AM
TS donated $50.00
Sep 28, 2020 1:43 AM
Lily and Soula Borovilos donated $50.00
Sep 27, 2020 9:20 PM
Bigfoot donated $25.00
Sep 26, 2020 4:49 PM
Emily & Matt Hamilton donated $150.00
Sep 26, 2020 3:38 PM
Daryl Mai and Denise R. donated $1,000.00
Sep 26, 2020 2:40 PM
Zachary Laite donated $20.00
Sep 26, 2020 2:34 PM
Sydney Addison-Rudat donated an undisclosed amount
Sep 26, 2020 1:57 PM
Lauren Day donated $25.00
Sep 26, 2020 1:54 PM
Gordon Restivo donated an undisclosed amount
Sep 26, 2020 1:49 PM
Alex Paris donated $50.00
Sep 26, 2020 1:21 PM
Maddy Hodges donated an undisclosed amount
Sep 26, 2020 12:21 PM
Caitlin Branthwaite donated $50.00
Sep 26, 2020 12:07 PM
Davide Cortinovis donated $100.00
Sep 26, 2020 10:55 AM
Steve Macpherson donated $40.00
Sep 26, 2020 9:08 AM
Brad Karulas donated $100.00
Sep 25, 2020 2:17 AM
Chloe Comeau donated $100.00
Sep 24, 2020 10:29 PM
Lucie Galerneau donated $50.00
Sep 24, 2020 7:32 PM
CUTLOOSE left a message
Sep 24, 2020 6:56 PM
keep up the good work hope you reach your goal and more. hi to TORI
cutloose donated $100.00
Sep 24, 2020 6:53 PM
Darrin and Sharon donated $100.00
Sep 24, 2020 6:23 PM
Anonymous donated an undisclosed amount
Sep 24, 2020 2:57 PM
Todd Larter donated $100.00
Sep 24, 2020 1:59 PM
The Demon :) donated an undisclosed amount
Sep 24, 2020 1:23 PM
Cindy Kuleshnyk donated $50.00
Sep 23, 2020 2:21 PM
Sylvia Geist donated $75.00
Sep 23, 2020 1:59 PM
Susan Gula left a message
Sep 22, 2020 2:29 PM
Happy to donate in lieu of the show this year. Will miss the show for sure.
Susan Gula donated $50.00
Sep 22, 2020 2:28 PM
Anonymous donated an undisclosed amount
Sep 21, 2020 8:30 PM
Arlyn Rathke donated $100.00
Sep 21, 2020 7:49 PM
Olga Papavassiliou donated $60.00
Sep 21, 2020 1:03 PM
Lisa donated $75.00
Aug 24, 2020 12:39 PM
Eleni Semes donated $50.00
Aug 23, 2020 4:32 PM
Jesse Caines donated $200.00
Aug 23, 2020 3:09 PM
Bill & Sophie Scott donated $100.00
Aug 22, 2020 9:36 PM
Jim left a message
Aug 21, 2020 9:05 PM
You will always have our support! Love you all!
Jim & Judy Manolakos donated $200.00
Aug 21, 2020 9:04 PM
Laurie and Alex donated $50.00
Aug 21, 2020 3:37 PM
Sukhie Kaur donated $50.00
Aug 21, 2020 2:55 PM
Julie Vlahos donated $100.00
Aug 17, 2020 7:23 AM
John Chronis donated $500.00
Jul 25, 2020 9:43 AM