Windy City Angels - Bank of America Chicago Marathon
PLEASE SPONSOR
Alexa MacInnis
Amount Raised
$1,635.00
Fundraising Goal $4,500.00

My Message

I am running the 2022 Chicago Marathon for my guy, Emmett (Em). To know Em is to love him. He has a lot of strengths, but at the top of the list is all things water. He's a swimming connoisseur, master fisherman, and professional rock tosser. A lover of theater, time with friends, and fart humor (who doesn't love a good stinky fart joke?) The simplest of things in life make him most happy. He is truly the most genuine being I've ever met. 

I have been a caregiver and friend of Emmett for over 6 years now. His family has become my own and Emmett has unknowingly taught me so many important life lessons. At 18-months, he was identified as an Angel, genotype UPD. His neurodivergence offers a different way of seeing the world and I often find myself inspired to try and see things through his lense as it is pure, honest, and free of judgement. I feel so grateful to be a recipient of his unconditional and unwavering love.

While Emmett’s naturalistic speech has always been limiting, he never fails at connecting with others by making his thoughts, wants, and needs known. He is the most persistent communicator I have ever met. Em's communication style is truly multimodal, using gestures, facial expressions and vocalizations to express himself; however, he also utilizes alternative and aumentative communication (AAC) tools such as a speech generating device to support his communicative needs. Caring for Em helped to re-affirm my decision to be a speech and language pathologist specializing in AAC. Everyone deserves a voice. So many Angels have to work so hard to communicate even the simplest of messages, battling frequent dysregulation, motoric difficulties, impaired naturalistic speech, and various other challenges to get their messages out.  I have always said that If I ever run a marathon it will be for Angelman Syndrome...Here I am!!! 

We all have a thing or two to learn from our Angels, starting with the way they love. I hope that Emmett and all other Angels alike have endless amounts of opportunity, support, love and compassion throughout their lifetime. As small token of my gratitude for all the years of love, friendship, and laughter, I will run 26.2 miles and fundraise for the Angelman Syndrome Foundation. Please consider supporting kids and families like Emmett’s by donating :)

Event:
Bank of America Chicago Marathon

My Team

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My Supporters (11)

Michele Howes donated an undisclosed amount
Jun 24, 2022 7:36 PM
Jessica Grill donated $60.00
Jun 14, 2022 2:26 PM
Lynne & Jim Lamb donated an undisclosed amount
Jun 8, 2022 4:47 PM
Leane Harrington donated an undisclosed amount
Jun 8, 2022 12:47 PM
Merewyn Harrington donated an undisclosed amount
Jun 6, 2022 2:53 PM
Dawn Giordano donated $25.00
Jun 6, 2022 4:55 AM
Diane Ryberg donated $30.00
Jun 6, 2022 4:52 AM
Anonymous donated an undisclosed amount
Jun 5, 2022 7:57 PM
Wendy Morrissey donated $100.00
Jun 5, 2022 7:36 PM
Kitty D Murphy left a message
Jan 5, 2022 9:51 AM
Welcome to the Windy City Angels, Alexa!! We are so proud and honored to have you represent the Angelman Syndrome Foundation and all our AS families! Thank you!
Angelman Syndrome Foundation donated $300.00
Dec 20, 2021 12:00 AM