Windy City Angels - Bank of America Chicago Marathon
PLEASE SPONSOR
Jennifer Pope
Amount Raised
$890.00
Fundraising Goal $2,000.00

My Message

Just over 24 years ago, we welcomed our second child Brian Jr. (BJ) into the world.  We were devastated when he had his first seizure at 15 months.  He would later be diagnosed with Angelman Syndrome (AS), a rare neuro-genetic disorder, that occurs in one in 15,000 births. I thought my world had collapsed.  Naturally, I blamed myself. It took years for me to realize that it was not my fault.

Angelman Syndrome is characterized by severe cognitive and motor delays, seizures, walking and balance disorder, unprovoked laughter, absence of speech, and characteristic facial features to name a few. Our family have experienced the thrills and challenges of raising BJ. Like others with AS, BJ requires lifelong care. We understand too well the profound impact that a lifelong condition has on families and the resources, support, and reassurance needed to meet these challenges. 

The Angelmans Syndrome Foundation, Inc., (ASF) is a non-profit organization. Its mission is to advance the awareness and treatment of Angelman syndrome through education and information, research, and support for individuals with Angelman syndrome, their families, and other concerned parties. Established in 1992, the Angelman Syndrome Foundation offers national, regional, and local support systems for affected individuals and their families. It also promotes and supports research on the diagnosis, treatment, management, and prevention of Angelman syndrome.

Although we now know the specific gene causing AS, research remains underfunded and underpublicized. Please help me reach my fundraising goal ($2,000.00) to help the Windy City Angels to open a new AS Clinic and support AS treatment research.

I never thought that I would ever run a marathon, but here I am getting ready to run my 13th marathon in a few months.  I am running in the Chicago Marathon for the 2nd time…1st with the Windy City Angels for my son BJ. He is my angel on earth. I would do anything for him. Staying fit allows me to care for my growing angel 😊. I hope you find it in your hearts to donate to help raise awareness about AS and fund research that will ultimately find a cure for AS.

 

THANK YOU so much for your support. 

Event:
Bank of America Chicago Marathon

My Team

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My Supporters (16)

Anonymous donated $75.00
Mar 27, 2022 1:20 PM
Kim Coleman donated an undisclosed amount
Mar 12, 2022 8:59 AM
Vee donated an undisclosed amount
Mar 10, 2022 6:58 PM
T. Grant donated $25.00
Mar 10, 2022 1:18 PM
Anonymous donated an undisclosed amount
Mar 10, 2022 12:58 PM
Alicia Renee donated $30.00
Mar 8, 2022 7:22 PM
Pamela Jones donated $40.00
Mar 8, 2022 4:47 PM
Corykay donated an undisclosed amount
Mar 8, 2022 4:02 PM
Phyllis Pope donated an undisclosed amount
Mar 8, 2022 3:07 PM
Anonymous donated an undisclosed amount
Mar 5, 2022 7:34 AM
Anonymous donated an undisclosed amount
Mar 4, 2022 9:01 PM
Lisa Wakefield left a message
Jan 31, 2022 4:16 PM
Much love to you and BJ! Can't wait to help you on some training runs!
Anonymous donated an undisclosed amount
Jan 31, 2022 4:15 PM
Kitty Murphy left a message
Jan 31, 2022 4:08 PM
Welcome to the Windy City Angels, Jennifer!! We are proud to have you represent the ASF in the Bank of America Chicago Marthon - 2022!! Thank your for your dedication and support for all AS families!
Jennifer Pope donated $100.00
Jan 31, 2022 3:08 PM
Angelman Syndrome Foundation donated $300.00
Jan 31, 2022 12:00 AM