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The Oakes Cystic Fi-Bro&Sis Team
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2 125,00 $
Objectif : 1 000,00 $

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Bruce Lee

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It’s that time of year again where my family and I are reaching out for your support.

On May 31, 2020 we will be tying up our laces and joining the Walk to Make Cystic Fibrosis History in hopes to find a cure for this horrible and devastating disease.

A little bit about our story that lead us to join in on the cause:

In January of 2010 when our son Maddox was just 7 months old, we were delivered with devastating news that Maddox had tested positive for Cystic Fibrosis. Again, in October of 2013 – 3 weeks after we welcomed our second beautiful baby Lilly, we were struck again with the same news that she had also tested positive for Cystic Fibrosis.

Maddox is a very happy and active 10-1/2 year old young man who enjoys everything from hockey, basketball, baseball, swimming, dirt bike and quadding and currently holds a black belt in taekwondo.

Lilly is our 6-1/2 year old diva who enjoys everything girlie but she’s not to be underestimated – she loves hockey, skating, swimming, quadding and currently holds a green stripe belt in taekwondo.

When we were given the news the first time, we didn’t know a lot about this disease, and for those of you who may not be familiar – Cystic Fibrosis is the most common fatal genetic disease affecting Canadian children and young adults. There is no cure. Cystic Fibrosis causes various effects on the body, but mainly affects the digestive system and lungs. The degree of cystic fibrosis involvement differs from person to person. However, the persistence and ongoing infection in the lungs, with destruction of lungs and loss of lung function, eventually causes death in the majority of people who have cystic fibrosis.

This year we plan to advocate more then the past 10 years as we have seen firsthand the effects that Cystic Fibrosis have on our children. Maddox tested positive in September with a very harmful bacteria that if not treated aggressively would impact his lung function at an extremely rapid rate. He was air ambulanced to the Stollery in Edmonton and had a PIC Line installed for the antibiotics to be administered. He was then air ambulanced back to the Northern Lights Hospital where he was admitted for the next 2 weeks to complete the IV treatments. After the 2-week period he then continued 3 months of treatments that would take upwards of about 4 hours per day to complete. During his admission to hospital he was not able to be within 6 feet of Lilly in order to avoid her picking up the bacteria as well. As of today, Maddox is negative for this bacteria and Lilly has also been tested negative!

The funds raised are invested in innovative research to help Cystic Fibrosis Canada pursue the next medical breakthrough and provide the highest standard of care for cystic fibrosis patients.

Please help support our family and many others like us who are also in hopes of a cure.

Donate and together we can make CF stand for ‘Cure Found’!

Thank you!!

The Oakes Cystic Fi-Bro&Sis Team

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Alberta - Fort McMurray
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Mandy Alward a fait don d'un 100,00 $
31 mai 2020 15:43

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