WHAT IS CYSTIC FIBROSIS?
- Cystic fibrosis (CF) is the most common, fatal genetic disease affecting young Canadians.
- It is estimated that 1 in every 3,600 children born in Canada has CF.
- Cystic fibrosis primarily affects the respiratory and digestive systems.
- In 1960, the majority of children with CF did not live to see their 5th birthday. Today, due to advancements in clinical care and research supported by Cystic Fibrosis Canada and through the generosity of individuals and corporations, the median age of survival for a child born with CF is estimated to be 53.3 years.
- Despite incredible achievements in CF research and care, there is no cure for this disease.
- Cystic Fibrosis Canada is the only charity focused on funding cystic fibrosis research in Canada. We are a national, non-profit, voluntary health agency with volunteers in 50 chapters across the country.
Cystic Fibrosis Canada is a global leader in the search for a cure for CF, investing more in life-saving research and clinical care than any other non-governmental agency in Canada. We are a national, non-profit, voluntary health agency with volunteers in 50 chapters across the country. We are committed to bringing together CF families, donors, volunteers, caregivers and researchers under one common goal:
to end CF.
Your generous contributions to the 65 Roses Gala support our core programs:
RESEARCH
Cystic Fibrosis Canada is proud to fund researchers who are committed to advancing our understanding of CF, discovering new therapies to treat CF and its complications, and enhancing the quality of life for those living with CF.
HEALTHCARE
CF care is multi-disciplinary and highly specialized. By supporting a network of 42 CF clinics across the country, Cystic Fibrosis Canada helps to ensure that the highest quality CF-specific care is available to the Canadian CF population. Accountability for this support is ensured through a formal accreditation process, which also promotes the upholding of national best practices.
ADVOCACY
Cystic Fibrosis Canada is a recognized leader in influencing public policy for better treatment and care, and for our ability to bring volunteer and staff advocates together — including people living with cystic fibrosis, caregivers, families, and members of the clinical team - to speak as one voice and bring about positive change.
REGISTRY
The Canadian CF Registry (CCFR) is a comprehensive collection of national CF data used to support and improve our knowledge and understanding of CF. Participating CF patients who attend any of the accredited 42 CF clinics across Canada are represented in the CCFR. The achievements and growing success of the CCFR would not be possible without the involvement of CF patients and their families as well as the dedication and support from CF clinic team members.