Frequently Asked Questions
Check below for some common questions! Still have a question? Contact events@huntingtonsociety.ca
What is Huntington disease?
HD is a fatal hereditary brain disorder with devastating effects on both the mind and body. It is like having the symptoms of Alzheimer’s, Parkinson’s and ALS in one disease. A child born to a parent with HD has a 50% chance of sharing the same fate. One in every 7,000 Canadians has HD and there is currently no known cure or meaningful treatment for HD. The good news is, many researchers and scientists believe that once we are successful in stopping the progression of HD, we will find the answers for many other neurological diseases.
For more info, visit: https://www.huntingtonsociety.ca/learn-about-hd/what-is-huntingtons/
Where does my gift go?
The Huntington Society of Canada is a not-for-profit charitable organization which raises funds to deliver individual and group counselling services to support individuals and families living with HD and to fund medical research to delay or stop the progression of the disease. The Society also works with health and social services professionals to enable them to better serve people living with HD. If you'd like specific information about how your dollars are put to use, check out the Annual Report here: https://www.huntingtonsociety.ca/about/annual-report-financials/
Who are Eli & the Straw Man?
Eli & the Straw Man is a collective of seasoned musicians from Canada’s Niagara region. The band formed in 2014 and has since gained a reputation for their charismatic live performances and nostalgic yet modern sound. Six personas deliver the mixed acoustic and electric instrumentation of Indie Roots Rock shaped by gospel and folk influences.
Band member Tamara Maiuri’s family is affected by Huntington disease. By day Tamara Maiuri works at McMaster University, under Ray Truant, researching Huntington disease. The band has actively been partnering with the Huntington Society of Canada to raise much needed funds and awareness. Learn more about the band here www.eliandthestrawman.com.
Why support this event?
Strong Track Record
We invite you to share in, and build on, our previous success with Eli & the Straw Man concerts benefiting the Huntington Society of Canada. This is the 3rd annual show in Niagara Falls, with the first two concerts raising $9,000 (2017) and $10,500 (2018). This yearly show has become a recognized event in the community with hundreds of return patrons and
regular press coverage (Niagara Falls Review, St Catharines Standard, Niagara College Broadcasting).
Since Spring 2016, Eli & the Straw Man have been spreading awareness about HD through their music and performances. They have partnered with four other Chapters of the Huntington Society of Canada to host seven benefit shows to date, bringing in over two thousand spectators across Canada and raising over $60,000. They were recognized for their achievements with the HSC's most prestigious award at the National Conference in 2018.
Marketing Opportunity
• There are 308 tickets available to this event, giving you a large and captive
audience
• Major sponsors will be mentioned on Cogeco’s “What’s New?” program
(interview date: January 7, 2019 with 2-week air time)
• Through website, social media, radio, print, and television outlets, we can
provide marketing opportunities for you across the Niagara area
• We expect many from outside of the region to travel in for our event, bringing
you an even further reach
Community Impact
The event raises funds and awareness on a local level for the Huntington Society of
Canada. You will be part of making an impact on the lives of those affected by
Huntington disease.